Tuesday, March 17, 2020

03/17/2020 THANKS TO YOU ALL!!!

We are continuously amazed at all of the love sent our way! March 7th the Huntsville Havoc had their annual St. Jude fundraiser game. Kaylee was invited to be a bench-warmer during warm-up. Many friends and Team Kaylee supporters came out.



March 9th Kaylee's AYSO United coaches and teammates came out to the Liberty vs MMS game (tied 1-1). After the game Coach David and her United teammates presented her with a blanket made by Coach Parker's wife and signed by her teammates.



On March 10th, Carmon, Emily, Leslye, and Katie participated in a St. Jude fundraiser at Hammer and Stain. Kaylee was able to make it there for a little while and work on her sign.


March 14th, Kaylee was scheduled to throw out the first ball to open the Monrovia Parks and Recreation Association Softball/Baseball season. That event has been postponed but she was very grateful to have been picked by MPRA for the honor.

Just like everyone else we are hunkering down and social distancing ourselves now to wait out this viral pandemic. Kaylee's immune system is good so she doesn't have any special concerns in relation to coronavirus. Our plan is to wait until this is all over, meet with St. Jude, and then formulate a course of treatment (whether it be surgery or more surveillance). I can't help but worry about all of the other kids who are receiving cancer treatment right now that are in danger from this pandemic. Please keep them in your prayers.

Again, the amount of love and support sent Kaylee's way by friends, teachers, coaches, and our community has been amazing! We thank you all for thinking of her ❤






Sunday, March 8, 2020

3/6/2020 Enjoy life

So far through this journey we have learned two things, patience and enjoy life!  We spoke with Dr. Daves of St. Jude today. She explained the controversial debate between the experts. Its complicated and clear as mud on the direction of treatment.  Dr. Daves presented Kaylee's case with both St. Jude tumor board and the local tumor board of HH.  Without getting into too much detail on her case today, I will say we are going to take a step back for now.  We, as in Kaylee's parents and you her support team, must take this time to just breathe. Taking a step back will allow Kaylee time to enjoy the things she loves most, soccer and cruising! Everyone agrees there is no need to rush in making a decision on best form treatments.

We are going to enjoy today! Even though we have watched Kaylee play soccer for almost 10 years, somehow her games are more important these days. Seeing her on that field, knowing she is doing something she loves, gives this momma butterflies!  With several more soccer games in our near future and our upcoming spring break cruise, it will be nice to have something to look forward to.

After we return from our spring break cruise she will help her team close out the MMS soccer season  at the County tournament.  Sometime in April we plan to meet with St. Jude doctors again to reevaluate our treatment options. This will give everyone time to review tests, scans, and research.

Wednesday, March 4, 2020

3/4/2020 Surgery Postponed

Welcome to the world of medicine! We were informed by Dr. Murrell, that the team has decided to postpone Kaylee's surgery until after spring break and allow her time to finish the soccer season with Monrovia Middle School. We are still waiting to hear more official news from the St. Jude team in Memphis. We were all extremely excited to hear this news!

Kaylee took this news to the soccer field this evening, where she played in her 1st middle school soccer game! With both of her aunts, grandma, and parents in the stands she scored 2 goals and had 2 assists! Monrovia laid out the mercy rule on Randolph 10-0, GO HAWKS! To say she is happy is an understatement!