So far through this journey we have learned two things, patience and enjoy life! We spoke with Dr. Daves of St. Jude today. She explained the controversial debate between the experts. Its complicated and clear as mud on the direction of treatment. Dr. Daves presented Kaylee's case with both St. Jude tumor board and the local tumor board of HH. Without getting into too much detail on her case today, I will say we are going to take a step back for now. We, as in Kaylee's parents and you her support team, must take this time to just breathe. Taking a step back will allow Kaylee time to enjoy the things she loves most, soccer and cruising! Everyone agrees there is no need to rush in making a decision on best form treatments.
We are going to enjoy today! Even though we have watched Kaylee play soccer for almost 10 years, somehow her games are more important these days. Seeing her on that field, knowing she is doing something she loves, gives this momma butterflies! With several more soccer games in our near future and our upcoming spring break cruise, it will be nice to have something to look forward to.
After we return from our spring break cruise she will help her team close out the MMS soccer season at the County tournament. Sometime in April we plan to meet with St. Jude doctors again to reevaluate our treatment options. This will give everyone time to review tests, scans, and research.
No comments:
Post a Comment